As I have searched the web and (virtually) met others with HS it has become apparent that most people who have had wide excision surgery had much larger and/or aggressive stage 3 areas than mine. So it seems to me to be important to address WHY I have opted for surgery at this point before I have exhausted other options. There are reasons, they may not be reasons others would have, they may not be right, but they are reason enough to me:
1. I do not believe any other treatment option will work.
A bold statement I know - and I may not be right, but my gut and my research tells me that for me at least this is true. I respect other people's experiences, I respect and thank them for sharing these experiences online so that people like myself can read them. Time and again I have read that people have tried this drug, that drug, the other drug etc etc and have ultimately ended up having surgery after years of no success. Not everybody, that's true, some have had remission from drug therapy - but nothing I have tried so far has worked for me.I have no desire to take stronger and stronger drugs to try and find one that works for me - whilst in the background my HS gets worse and worse and therefore harder to treat.
2. It's getting worse.
Every flare up seems to be worse than the last, and it's spreading. It used to favour the top half of my axilla now it is edging ever closer to my breast. Should I wait and see if it stays put and risk having to have a larger area excised in the future? No thanks - I would rather have it removed now before it forms more tracks and becomes harder to remove.I believe that the earlier it is dealt with the more chance of success I have.
3. My quality of life NOW is not acceptable.
Above everything this is the main reason. Yes, other people have "worse" HS than myself, but ultimately right now this condition is having a huge negative impact on my life. It stops me doing things I want/need to do, it causes me pain, it lowers my self esteem. Yes, it could be a lot worse (and I believe if left it would quickly become so) but I'm not prepared to put up with my life being continually disrupted just because it's not as bad as it COULD be.
4. It won't stop fighting - so neither will I!
There are no guarantees - the surgery may not work. But I have a shot at actually removing this horrible affliction - not just suppressing it, not just reducing it but actually removing it. I may not beat it, but I'm going on the offensive - You want to mess with me HS? Let's see how you fare against the scalpel then!
5. I owe it to my family.
It is not fair on my husband and kids to keep having to put up with a mummy/wife who either cannot do things we had planned because of the pain or keeps ending up having emergency surgeries disrupting everybody and causing worry and stress. HS CAN be hereditary in some cases (not all) so there's a chance that one or both my children may get it later in life - I need to know if this will work if done early enough for their sakes too.
HS Treatment that works
ReplyDeleteDear HS sufferer,
How do we prove to you that this treatment is different from the rest?
There are too many remedies and recommendations out there, when a real treatment & info is in front of you, how do you tell this is the one that works all the way to complete recovery?
Our agency is Lux Research -Give us One & a half months, after taking our course treatment and that
should be enough proof - since almost everyone who took our formula mentioned
they noticed the difference, the Transformation and the improvement is significant and people will be able to tell the change is going in the right direction - improvement and symptoms disappear or less intense means - this treatment works.
One month & half - 45 days is not enough to cure but it is sufficient time
to compare the Before and AFter RESULTS and that is the sign & clue that tells you this is it and all you have to do is continue and you'll get over this (hateful) disease.
Hidradenitis suppurativa is an autoimmune disease and is caused by Antibodies to gluten.
How & Why - the mechanism is called Oral Tolerance (O.T.).
Basically - O.T. - subjects ingest tiny doses of antigen over time and the Theory is the
immune system develops a tolerance to that particular antigen and in time will lead
to a cure.
If you want more info on Oral Tolerance , please view:
http://suite101.com/article/oral-tolerance-therapy-a8796
However, the O.T Explanation . is too simple - The Most Important advances are given by authority & Expert - Dr. Polly Matzinger who says O. T. depends on the T suppressor cell which lowers Antibody production.
Dr. Matzinger's theory - there are 2 signals for T cell full Activation:
1.) first an antigen -We cannot use gluten, it causes HS, instead a peptide similar to gluten - this primes or makes ready theT cell. But without the 2nd signal the T cell remains in anergy( no activity).
2.) the Second signal - is CD80 or CD86 - either one is enough to make the Tcell go thru the changes that makes it a fully activated cell.
People produce CD80/CD86 but in autoimmune patients it is not enough
to fix HS.
However, there is a safe way of inducing the blood to produce CD80/86 factor & that is through Herbs.
EXamples:
1.) Agaricus bisporus - can induce CD80 . Agaricus bisporus is the white Button mushroom or champignon mushroom found in most U.S. and Canadian supermarkets.
see article http://www.ncbi.nlm.nih.gov/pubmed/18287364
2.) Goji berry known as Lycium barbarum - juice and extracts induces CD80-available from most Food supplement stores & the internet
See article http://www.ncbi.nlm.nih.gov/pubmed/19170138
In our treatment, a course is 21 days.
Moderate cases need - 3 to 4 months.
Severe - need 4 &Half to 5 &half months treatment.
If you get this treatment, you will know it will be successful since every course, there
is transformation that brings better and better results than the previous course.
Altho, we have cures, it is not enough to be accepted by the Medical
community and we have to go by THEIR Rules.
We are giving our Treatment free to HS folks. We shoulder all costs
including Air Mail expenses to you.
This is a win-win situation, you get healed and we get acceptance.
WE will write an article for submission to a health, New medicine or Research
journal.
If you are interested in trials, please write us.
himmerland2000@yahoo.ca
Lux Research - a division of Lux Health Resources,
BC, Canada
HOw can you posst such rubbish about whats the reason for HS
ReplyDeleteNothing in Your comment above has any fact in real life and most certainly not is it caused by gluten allergi
Say a suffere now for 24 years -